ME/CFS Research ME and Chronic Fatigue Syndrome CAHN are supporting our colleagues, the ME/CFS Priority Setting Partnership, who are asking people with ME/CFS what they see as their priorities for research in Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome. This deeply disabling condition affects about 250,000 people in the UK. Diagnosis is often delayed, sometimes for years, and currently there are no effective treatments. The ME/CFS Priority Setting Partnership is asking people with ME/CFS, their carers and professionals involved in their care (as opposed to researchers) what research questions they would prioritise about ME/CFS through an online questionnaire. The findings, particularly the final top 10 priority research questions, are publicised and used by funding bodies when assessing applications for grants, and so can make a difference to the direction of research in the UK. People can select any area of their life with ME/CFS and the research they want, when filling out the questionnaire. The questionnaire itself suggests some of the kinds of questions people may think of, including some possible areas for research, to help stimulate thinking. The questionnaire for people to give their answers is online, though it is also possible to ask for paper copies, or to give answers by telephone (details for these options are on the website). It will remain open until 5th July 2021. The link explaining more about the project is here:- https://www.psp-me.co.uk
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